The Fabry Files – a Column by Eunice White

April 15, 2020April 13, 2020

COVID-19 Didn’t Cancel Fabry Disease Awareness Month

Columns, The Fabry Files - a Column by Eunice White

I have started and stopped and restarted this column so many times that I have lost count. My brain is fuzzy, my mind can’t seem to settle, and my beloved ... Read more

March 11, 2020March 9, 2020

In Exercise and Health, We Keep Moving Forward

Columns, The Fabry Files - a Column by Eunice White

Feb. 29 wasn’t just leap day, it also was Rare Disease Day. I wrote in a previous column about See Rare Run, a virtual race to raise awareness for people ... Read more

February 5, 2020February 4, 2020

This Year, I’m Running for Rare Diseases

Columns, The Fabry Files - a Column by Eunice White

New Year’s resolutions. Do you make them? Do you keep them? Are you still going strong? Or are you like the 75 to 80 percent of Americans who quit ... Read more

January 8, 2020January 7, 2020

How I Found My Road to Exercise

Columns, The Fabry Files - a Column by Eunice White

It’s 4:45 a.m. and the alarm is sounding. What comes to mind when you read that sentence? Maybe something like sleep, dark, too early, nighttime, must be a siren ... Read more

December 4, 2019December 2, 2019

Answering the Hard Question for Which No Parent Is Prepared

Columns, The Fabry Files - a Column by Eunice White

“Mom, can Fabry kill you?” This wasn’t the first time this question was posed to me. The first time my child asked me, I was taken aback. It seemingly ... Read more

November 6, 2019November 4, 2019

Walking a Mile in My Mother’s Shoes

Columns, The Fabry Files - a Column by Eunice White

They say you never truly know what someone else is going through until you walk a mile in their shoes. Let’s rewind to when I was growing up. Whenever I ... Read more

October 16, 2019November 1, 2019

Attending a Fantastic Family Camp Full of ‘Fabbers’

Columns, The Fabry Files - a Column by Eunice White

Fabber. Have you ever heard that term? It’s used to describe those with Fabry disease. I recently spent a weekend with my family and fellow “Fabbers.” I had many ... Read more

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