October 13, 2020October 13, 2020
Kidney Foundation Opens Effort to Raise Awareness of Fabry Disease
News
The American Kidney Fund (AKF) has opened a Fabry disease education and awareness campaign that encourages people with chronic kidney ... Read more
October 9, 2020October 9, 2020
Independent Living for Fabry Disease Patients
Health Insights
Having a chronic condition such as Fabry disease can be particularly concerning if you are living alone. However, there are ... Read more
October 7, 2020October 5, 2020
The Challenges of Parenting With Fabry Disease
Columns, The Fabry Files - a Column by Eunice White
What is my job as a parent? In thinking this question through, I came up with a few answers, ... Read more
October 6, 2020October 6, 2020
Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos
News, syndicated
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their ... Read more
October 2, 2020October 2, 2020
Preimplantation Genetic Diagnosis (PGD) for Fabry Disease
Health Insights
If you or your partner has a family history of Fabry disease, you may want to lower your risk ... Read more
September 29, 2020September 29, 2020
Using Telemedicine Ensures Patient Monitoring and Safety in Emergencies, Study Says
News
In times of emergency, telemedicine, home-based treatments, and lab tests should be adopted whenever possible to help people with ... Read more
September 28, 2020September 28, 2020
Efforts Continue Beyond Awareness Month to Expand Newborn Screening Panels in US
News, syndicated
It took one year for Dona Krystosek to get a diagnosis for her son, Levi, after he was born. ... Read more
September 25, 2020September 25, 2020
Reproductive Options for People With Fabry Disease
Health Insights
The thought of potentially passing Fabry disease on to your children can be daunting. However, there are options to ... Read more
September 23, 2020August 22, 2020
My Childhood Made Sense After My Diagnosis
Columns, Fabry: A Road Less Traveled – a Column by Jerry Walter
I had a happy childhood. It was fun to grow up in a large family with six brothers and ... Read more
September 17, 2020September 18, 2020
Prenatal Genetic Diagnosis for Fabry Disease
Health Insights
Prenatal genetic diagnosis can be a useful tool to detect genetic disorders such as Fabry disease. The following information ... Read more
September 15, 2020September 15, 2020
Long-Term Galafold Safe, Effective as Fabry Treatment, ATTRACT Extension Shows
News
The results from a one-year extension study of the Phase 3 ATTRACT trial demonstrate the long-term safety and effectiveness ... Read more
September 11, 2020September 11, 2020
Newborn Screening for Fabry Disease
Health Insights
Research has shown that newborn screening can effectively detect Fabry disease in infants. Still, more efforts are necessary to expand ... Read more

October 13, 2020October 13, 2020

Kidney Foundation Opens Effort to Raise Awareness of Fabry Disease

News

The American Kidney Fund (AKF) has opened a Fabry disease education and awareness campaign that encourages people with chronic kidney disease (CKD) who don’t know the underlying cause of their ... Read more

October 9, 2020October 9, 2020

Independent Living for Fabry Disease Patients

Health Insights

Having a chronic condition such as Fabry disease can be particularly concerning if you are living alone. However, there are steps you can take to help you live well and ... Read more

October 7, 2020October 5, 2020

The Challenges of Parenting With Fabry Disease

Columns, The Fabry Files - a Column by Eunice White

What is my job as a parent? In thinking this question through, I came up with a few answers, but it’s not an exhaustive list. I am to protect, ... Read more

October 6, 2020October 6, 2020

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

News, syndicated

Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their favorite photographs in a calendar contest to heighten awareness of rare ... Read more

October 2, 2020October 2, 2020

Preimplantation Genetic Diagnosis (PGD) for Fabry Disease

Health Insights

If you or your partner has a family history of Fabry disease, you may want to lower your risk of passing the disease to your children by choosing in vitro ... Read more

September 29, 2020September 29, 2020

Using Telemedicine Ensures Patient Monitoring and Safety in Emergencies, Study Says

News

In times of emergency, telemedicine, home-based treatments, and lab tests should be adopted whenever possible to help people with Fabry disease manage their condition while ensuring their safety, an ... Read more

September 28, 2020September 28, 2020

Efforts Continue Beyond Awareness Month to Expand Newborn Screening Panels in US

News, syndicated

It took one year for Dona Krystosek to get a diagnosis for her son, Levi, after he was born. The family received three misdiagnoses of fatal diseases until they ... Read more

September 25, 2020September 25, 2020

Reproductive Options for People With Fabry Disease

Health Insights

The thought of potentially passing Fabry disease on to your children can be daunting. However, there are options to limit this risk and help with family planning. How is ... Read more

September 23, 2020August 22, 2020

My Childhood Made Sense After My Diagnosis

Columns, Fabry: A Road Less Traveled – a Column by Jerry Walter

I had a happy childhood. It was fun to grow up in a large family with six brothers and one sister, especially during the holidays. I am the third ... Read more

September 17, 2020September 18, 2020

Prenatal Genetic Diagnosis for Fabry Disease

Health Insights

Prenatal genetic diagnosis can be a useful tool to detect genetic disorders such as Fabry disease. The following information should help you understand the process, including what happens before, ... Read more