Cumbersome security procedures, rising airfares, and shrinking legroom have made commercial air travel difficult enough these days — even for…
Articles by Larry Luxner
Two of the world’s top experts in Fabry disease, geneticists Dominique Germain of France and Gheona Altarescu of Israel,…
Madeline Collin, a 24-year-old activist with Gaucher disease, worries that patients like her will suffer deeply if Britain leaves…
With each new advance in medicine comes ethical dilemmas, from fertility treatments and newborn screening, to vaccinations, gene therapies and…
The world’s biggest gathering of rare disease researchers, patient groups, pharmaceutical executives, and government officials is planned for April 10–12…
About 100 scientists, researchers, pharmaceutical executives, and others will converge on Austria’s capital city early next month for the…
G71.01 is, literally, the code for Duchenne muscular dystrophy. Â Q93.51 stands for Angelman syndrome, and G40.419 covers generalized…
Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures — at exactly the same time…
With the U.S. midterm elections now less than two weeks away, patient advocacy groups are solidly focused on a range…
Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced to seven years in federal prison…