Columns

January 8, 2020January 7, 2020

How I Found My Road to Exercise

Columns, The Fabry Files - a Column by Eunice White

It’s 4:45 a.m. and the alarm is sounding. What comes to mind when you read that sentence? Maybe something like sleep, dark, too early, nighttime, must be a siren ... Read more

December 17, 2019December 13, 2019

Facing Fears About Fabry After a Hospital Admission

Chronically Caring – a Column by Morgan Yontz, Columns

In recent weeks I have had a traumatic medical experience that has affected me in ways I couldn’t have imagined. I began to feel unwell three weekends ago and ... Read more

December 4, 2019December 2, 2019

Answering the Hard Question for Which No Parent Is Prepared

Columns, The Fabry Files - a Column by Eunice White

“Mom, can Fabry kill you?” This wasn’t the first time this question was posed to me. The first time my child asked me, I was taken aback. It seemingly ... Read more

November 19, 2019November 15, 2019

This Is What I’m Grateful for Following My Family’s Fabry Diagnoses

Chronically Caring – a Column by Morgan Yontz, Columns

Being diagnosed with Fabry disease turned my world upside down. Finding ways to cope and accept my new life, as well as that of my son, was crucial. Reminding ... Read more

November 6, 2019November 4, 2019

Walking a Mile in My Mother’s Shoes

Columns, The Fabry Files - a Column by Eunice White

They say you never truly know what someone else is going through until you walk a mile in their shoes. Let’s rewind to when I was growing up. Whenever I ... Read more

October 22, 2019October 18, 2019

Learning to Make My Voice Heard

Chronically Caring – a Column by Morgan Yontz, Columns

I have always been the type of person to go out of my way to make sure I don’t inconvenience others. Raised to stand on my own two feet, ... Read more

October 16, 2019November 1, 2019

Attending a Fantastic Family Camp Full of ‘Fabbers’

Columns, The Fabry Files - a Column by Eunice White

Fabber. Have you ever heard that term? It’s used to describe those with Fabry disease. I recently spent a weekend with my family and fellow “Fabbers.” I had many ... Read more

September 24, 2019September 20, 2019

Transitioning to Home Infusions: Expectation vs. Reality

Chronically Caring – a Column by Morgan Yontz, Columns

I was amazed by all of the support available to us at the beginning of our treatment journey. We received phone calls to make sure we were managing our ... Read more

August 20, 2019August 16, 2019

The Start of the Journey

Chronically Caring – a Column by Morgan Yontz, Columns

Welcome to Morgan Yontz’s “Chronically Caring,” a new Fabry Disease News column. The first step I first learned of Fabry disease when my aunt tested positive after years of suffering ... Read more

Pin It on Pinterest