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Fabry Family Conference
October 17 @ 9:00 AM - October 18 @ 4:30 PM
On Wednesday, many, if not most, individuals and families arrive at the conference hotel where selected activities will be conducted.
The full conference begins with a conference exhibit hall on Thursday. Representatives from the pharmaceutical industry, clinics, and support organizations will be stationed at exhibit tables to provide information and answer questions.
A Thursday evening buffet dinner will provided at 6:00 pm.
On Friday, while adults are in the educational presentation sessions, the children are in chaperoned activities rooms all day with contracted nannies and tutors. Fabry healthcare providers, as well as representatives of the pharmaceutical industry and support organizations, will provide educational presentations.
On Wednesday and Thursday, various focus groups, survey opportunities, and other activities will occur. Please read our periodic e-newsletter and monitor our Facebook page (www.facebook.com/FabryDisease) for updates.
After the conference, families participating in our follow-on Fabry Family Camp camp at Victory Junction will proceed to camp on NFDF-provided buses for attendees who did not drive their cars. Families driving will depart for camp just before the buses.