Fabry Disease Foundation

Each year since 2011 the National Fabry Disease Foundation has held its Fabry Family Education Conference in Greensboro, NC, and its Fabry Family Weekend Camp at nearby Victory Junction Camp in Randleman, NC. The conference is held on Thursday and Friday followed by the camp on Friday afternoon until noon on Sunday. All individuals with […]

We go to a very special place each September/October when we hold our annual Fabry Family Weekend Camp. We bring everyone to Greensboro, North Carolina on Wednesday or early Thursday for informal conference activities, then a full day of educational presentations on Friday. At about 4:30 pm on Friday, we transport approved families to nearby […]