On Wednesday, many, if not most, individuals and families arrive at the conference hotel where selected activities will be conducted. The full conference begins with a conference exhibit hall on Thursday. Representatives from the pharmaceutical industry, clinics, and support organizations will be stationed at exhibit tables to provide information and answer questions. A Thursday evening […]
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In 2024, the National Fabry Disease Foundation will host the annual Fabry Family Camp on October 18-20. The NFDF's contracted annual camp at Victory Junction Camp, located in Randleman, NC, provides a wonderful, expense-free experience for families with Fabry disease. To learn about the camp's facilities, see https://victoryjunction.org/. Families with at least one child 6-16 years […] |
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