Our quest to find a doctor with experience treating Fabry disease
My first column for Fabry Disease News introduced readers to my family’s Fabry story. In it, I described the unexpected “crooked lines” of a summer trip that led to my twin teenage…
Susanna VanVickle is a Cajun girl who grew up traveling the world as a missionary kid. Today she is a wife, mom, and teacher in North Texas. In 2019 she and three of her five children were diagnosed with Fabry disease. Though the rare disease journey came as a complete surprise, the VanVickle family tries to see the bigger picture and how a straight path can be drawn with crooked lines. As a Bionews columnist, Susanna now shares bits and pieces of her family’s experience with Fabry, hoping to encourage others who are in the trenches of the rare disease struggle.
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