From Fabry disease symptoms to diagnosis: Here’s my family’s story
Our family’s Fabry disease story started in the summer of 2019. I had driven a carload of teens from Dallas to my Cajun homeland for a youth camp, which was unexpectedly cut short…
Straight Paths With Crooked Lines — Susanna VanVickle
Susanna VanVickle is a Cajun girl who grew up traveling the world as a missionary kid. Today she is a wife, mom, and teacher in North Texas. In 2019 she and three of her five children were diagnosed with Fabry disease. Though the rare disease journey came as a complete surprise, the VanVickle family tries to see the bigger picture and how a straight path can be drawn with crooked lines. As a Bionews columnist, Susanna now shares bits and pieces of her family’s experience with Fabry, hoping to encourage others who are in the trenches of the rare disease struggle.
Completing college and living full lives with Fabry disease
Two friends and I recently left the warmth of Texas to brave the snow and freezing temperatures of Kansas, where the three of us have sons at Benedictine College. The campus hosts a mother-son…
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