Like many American homes in January, our household is working to change habits. We’ve decided to take on the challenge of purging our diets of sugar, gluten, and highly processed foods. At the moment, four of us in the house are prepared to embrace clean eating, but only one of…
My 12-year-old daughter was diagnosed with Fabry disease in spring 2019. Because she’s relatively new to having Fabry, I thought it’d be interesting to collect her thoughts on life with a rare disease. Me: What were your thoughts upon receiving your Fabry diagnosis?…
They say you never truly know what someone else is going through until you walk a mile in their shoes. Let’s rewind to when I was growing up. Whenever I exerted myself through exercise or was sick with a fever (even a low-grade one), I had…
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