Throughout my life, I’ve often put mind over matter to cope with the manifestations of my multisystem disease. I used…
Jerry Walter
Jerry’s interest in Fabry disease stems from his personal experience: He has Fabry disease along with 23 immediate and extended family members, including five family members who passed away between 37 and 51 years old due to this condition. Jerry believes serving the Fabry community is what he was meant to do. After all, in addition to surviving Fabry disease, Jerry has survived two life-threatening bacterial infections, Guillain-Barre syndrome, and the Sept. 11 attack on the Pentagon where he was an Army strategic planner. Jerry has many Fabry disease symptoms and in 2020 received a heart transplant to keep him having birthdays long into the future.
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Articles by Jerry Walter
Millions of adults around the world have hearing loss. Like me, most people have a relative who speaks loudly, turns…
Because April is Fabry Disease Awareness Month, I, along with many organizations and people, help to educate patients, family members,…
I never imagined my first episode of irregular heartbeats, or arrhythmias, in the late 1970s would lead to getting…
Because Fabry disease affects multiple bodily systems, it was easy to get in the habit of managing each symptom separately,…
Fabry disease is a progressive, potentially life-threatening, rare, genetic disorder. Many people with Fabry disease succumb to heart disease, kidney…
I Feel Like a Cat With 9 Lives
I am a 66-year-old male with Fabry disease, which causes many adverse and potentially life-threatening symptoms. As I look back…
As a boy, I wasn’t aware Fabry disease caused the many physical issues I experienced, such as a reduced ability…
I had a happy childhood. It was fun to grow up in a large family with six brothers and one…
Everyone performs their own balancing act to navigate the many facets of their lives. Most people have competing interests and…