Mary Chapman, features writer —

Mary graduated from Wayne State University with a degree in journalism. She began her career at United Press International, then spent a decade reporting for the Bureau of National Affairs, Inc. (now Bloomberg Industry Group). Mary has written extensively for The New York Times, and her work has appeared in publications such as Time, Newsweek, Fortune, and the Chicago Tribune. She’s won a Society of Professional Journalists award for outstanding reporting.

Articles by Mary Chapman

Celebrating ‘Fabry Heroes’ during Awareness Month this April

For this year’s Fabry Awareness Month — observed every April to bring attention to Fabry disease — the spotlight is on the everyday heroes who live with the rare genetic lysosomal storage disorder. Activities during the month are aimed at heightening awareness among the general public, in addition to…

Patients Wanted to Test Device for Detecting Cardiac Problems in Fabry

A clinical study in the U.K. is recruiting adults with Fabry disease (FD) to determine whether implantable loop recorders (ILRs) — a device for continuous heart monitoring — can improve arrhythmia detection and identify risk predictors for cardiac problems. Participants’ heart rhythms will be tracked, using the surgically implanted…

Fabry International Network Seeks Entries for FIN Award 2022

The Fabry International Network (FIN) is calling for global submissions for its annual FIN Award, which recognizes the efforts of patient organizations to educate and unify the Fabry disease community and to heighten awareness of the rare genetic lysosomal storage disorder. Projects must be initiated this year for…

Patients Can Improve Mindfulness With MPS Society Online Series

An eight-week, online mindfulness series for people with Fabry disease — aimed at relieving pain, reducing stress, and improving overall well-being — will open Sept. 29 and is currently enrolling participants. The Zoom series, which runs through Nov. 24, is presented by the MPS Society, which provides…

EveryLife Introduces First of Kind ‘Roadmap’ to ICD Codes

To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes — are assigned, updated, and revised in the U.S. health information system, the EveryLife Foundation for Rare Diseases is presenting a first-of-its-kind resource guide. The foundation created the…

‘Break a Sweat for Fabry’ and Other Activities Mark Awareness Month

Activities ranging from sharing educational posters to “breaking a sweat” are underway to mark Fabry Disease Awareness Month, set aside each April to call attention to this rare genetic disorder. Awareness and education are crucial to increasing the recognition, diagnosis, understanding, and management of Fabry disease, estimated to affect about…

How Family Members Can Help Fabry Disease Patients

Fabry disease is a progressive, rare, genetic disorder that can lead to a number of health issues that affect a person’s everyday life. Following are some ways that family members can assist someone living with Fabry disease. About Fabry disease Fabry disease results from the abnormal buildup of a…

FAQs About Replagal

Replagal is a treatment for Fabry disease patients ages 7 and older. Shire (now owned by Takeda) developed it. Although in use in many countries, including those of the European Union, the U.S. Food and Drug Administration (FDA) has not approved Replagal. Following are answers to some frequently…