Author Archives: Mary Chapman

Creating a Treatment Plan for Fabry Disease

Because Fabry disease affects multiple organs, patients are well advised to keep a comprehensive and personal treatment plan. Here’s what you should know about such a plan, including how to work with your primary physician to create one. What is a treatment plan? A treatment plan is a clear,…

The Spoon Theory and Fabry Disease

Fabry disease can lead to problems at home, school, work, and everyday life. The disorder affects your whole body and can cause intense bouts of pain, a skin rash, and progressive loss of vision, hearing, and kidney functions. Your journey can be overwhelming and difficult to explain. A metaphor…

Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening awareness about rare diseases and the hundreds of millions of individuals they are thought to affect. Patients, caregivers, and advocates worldwide will sport denim ribbons…

The Assistance Fund Now Offering Financial Help to Eligible Fabry Disease Patients

To help reduce out-of-pocket medical expenses associated with managing and treating Fabry disease, an independent charitable patient assistance foundation has now added the disorder to its programs. Called The Assistance Fund (TAF), the organization assists eligible patients with insurance co-payments, coinsurance, deductibles, and other health-related expenses. Fabry disease…