Chronically Caring – a Column by Morgan Yontz

Both Morgan and her son were diagnosed with Fabry disease in August 2017. She lives in Arizona, where she works hard to help other patients come to acceptance of their Fabry diagnosis — this column aims to be educational for both her and her readers.

March 24, 2020March 23, 2020

For My Daughter on Her Birthday

Chronically Caring – a Column by Morgan Yontz, Columns

I’m writing this column on the eve of my daughter’s 13th birthday. We are six days into social distancing in an effort to help stop the spread of the ... Read more

February 25, 2020February 24, 2020

Rare Disease Day Means Finding Strength in Community

Chronically Caring – a Column by Morgan Yontz, Columns

Being diagnosed with a chronic illness is stressful. Add to that the fact that most people, including many doctors, have never heard of many rare diseases, and the process ... Read more

January 28, 2020January 24, 2020

I’m Learning to Let People In

Chronically Caring – a Column by Morgan Yontz, Columns

I recently started enzyme replacement therapy for Fabry disease at the children’s hospital where my son has been receiving the same treatment for a little over a year. The ... Read more

December 17, 2019December 13, 2019

Facing Fears About Fabry After a Hospital Admission

Chronically Caring – a Column by Morgan Yontz, Columns

In recent weeks I have had a traumatic medical experience that has affected me in ways I couldn’t have imagined. I began to feel unwell three weekends ago and ... Read more

November 19, 2019November 15, 2019

This Is What I’m Grateful for Following My Family’s Fabry Diagnoses

Chronically Caring – a Column by Morgan Yontz, Columns

Being diagnosed with Fabry disease turned my world upside down. Finding ways to cope and accept my new life, as well as that of my son, was crucial. Reminding ... Read more

October 22, 2019October 18, 2019

Learning to Make My Voice Heard

Chronically Caring – a Column by Morgan Yontz, Columns

I have always been the type of person to go out of my way to make sure I don’t inconvenience others. Raised to stand on my own two feet, ... Read more

September 24, 2019September 20, 2019

Transitioning to Home Infusions: Expectation vs. Reality

Chronically Caring – a Column by Morgan Yontz, Columns

I was amazed by all of the support available to us at the beginning of our treatment journey. We received phone calls to make sure we were managing our ... Read more

August 20, 2019August 16, 2019

The Start of the Journey

Chronically Caring – a Column by Morgan Yontz, Columns

Welcome to Morgan Yontz’s “Chronically Caring,” a new Fabry Disease News column. The first step I first learned of Fabry disease when my aunt tested positive after years of suffering ... Read more