Fabry: A Road Less Traveled – a Column by Jerry Walter

Jerry’s interest in Fabry disease stems from his personal experience: He has Fabry disease along with 23 immediate and extended family members, including five family members who passed away between 37 and 51 years old due to this condition. Jerry believes serving the Fabry community is what he was meant to do. After all, in addition to surviving Fabry disease, Jerry has survived two life-threatening bacterial infections, Guillain-Barre syndrome, and the September 11 attack on the Pentagon where he was an Army strategic planner. Jerry has many Fabry disease symptoms and in 2020 received a heart transplant to keep him having birthdays long into the future. Jerry was born and raised in Michigan. He has a BS degree from Michigan State University and an MS degree from Central Michigan University. He currently lives in Hillsborough, North Carolina, with his wife Angela and two dogs, Molly and Annah.
November 19, 2020 Columns by Jerry Walter

Having Fabry While in the Army Was Like Mixing Oil and Water

As a boy, I wasn’t aware Fabry disease caused the many physical issues I experienced, such as a reduced ability to perspire (called hypohidrosis), intolerance to hot temperatures and strenuous physical activity, pain (acroparesthesia) from small fiber neuropathy, and chronic gastrointestinal (GI) issues (mainly diarrhea). I overheated…

September 23, 2020 Columns by Jerry Walter

My Childhood Made Sense After My Diagnosis

I had a happy childhood. It was fun to grow up in a large family with six brothers and one sister, especially during the holidays. I am the third eldest. As part of a low-to-middle-income family, we all received new things occasionally, but we also made good use of hand-me-down…

August 19, 2020 Columns by Jerry Walter

Managing Fabry Disease Requires a Balancing Act

Everyone performs their own balancing act to navigate the many facets of their lives. Most people have competing interests and needs of one kind or another. Finding the middle ground to keep everything in sync can be challenging. People with complex chronic illnesses like Fabry disease seem to have more…

July 22, 2020 Columns by Jerry Walter

Fabry Disease: A Road Less Traveled

For my introductory Fabry Disease News column, I’d like to share a little about me and my journey with Fabry disease. Just over 40 years ago, in 1979, Fabry disease was discovered in my family. My mother was diagnosed with an eye exam when she was hospitalized for an unrelated…

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