Fabry: A Road Less Traveled – a Column by Jerry Walter
Jerry’s interest in Fabry disease stems from his personal experience: He has Fabry disease along with 23 immediate and extended family members, including five family members who passed away between 37 and 51 years old due to this condition. Jerry believes serving the Fabry community is what he was meant to do. After all, in addition to surviving Fabry disease, Jerry has survived two life-threatening bacterial infections, Guillain-Barre syndrome, and the September 11 attack on the Pentagon where he was an Army strategic planner. Jerry has many Fabry disease symptoms and in 2020 received a heart transplant to keep him having birthdays long into the future. Jerry was born and raised in Michigan. He has a BS degree from Michigan State University and an MS degree from Central Michigan University. He currently lives in Hillsborough, North Carolina, with his wife Angela and two dogs, Molly and Annah.
Fabry disease is a progressive, potentially life-threatening, rare, genetic disorder. Many people with Fabry disease succumb to heart disease, kidney disease, and stroke at relatively young ages. A common question ... Read more
As a boy, I wasn’t aware Fabry disease caused the many physical issues I experienced, such as a reduced ability to perspire (called hypohidrosis), intolerance to hot temperatures and strenuous ... Read more