Newly Diagnosed: You Are Not Alone on Your Journey

Whether you are a patient or a caregiver, it’s important to remember that you are not alone on this journey with Fabry disease and that others have been in your shoes. Here’s a collection of some of our columnists’ words that they would like to share to help guide, inspire, and encourage you.

The Start of the Journey

When columnist Morgan Yontz suspected she had Fabry disease, she had to face her fears and get herself tested. And then she had to take an even harder step: getting her children tested. She and her son tested positive, but they are moving forward as a family.

Read the column

In Managing Fabry Symptoms, We Must Leave No Stone Unturned

Columnist Jerry Walter writes how he learned to manage his symptoms and monitor for any new symptoms that may be related to Fabry disease. In leaving no stone unturned, he has been able to better handle his condition.

Read the column

This Is What I’m Grateful for Following My Family’s Fabry Diagnoses

When Morgan and her son were diagnosed with Fabry, it turned her world upside down, but she is grateful for many things, most especially her family. Writing a list of what she’s thankful for gives her strength to keep fighting and live life to the fullest.

Read the column

Answering the Hard Question for Which No Parent Is Prepared

Columnist Eunice White opens up about the life expectancy of Fabry disease and how she answered tough questions from her children. Knowing the best way to answer can help alleviate concerns from caregivers and patients alike.

Read the column