I haven’t read any medical literature indicating that Fabry disease weakens the immune system, but most post-transplant medications…
Jerry Walter
Jerry’s interest in Fabry disease stems from his personal experience: He has Fabry disease along with 23 immediate and extended family members, including five family members who passed away between 37 and 51 years old due to this condition. Jerry believes serving the Fabry community is what he was meant to do. After all, in addition to surviving Fabry disease, Jerry has survived two life-threatening bacterial infections, Guillain-Barre syndrome, and the Sept. 11 attack on the Pentagon where he was an Army strategic planner. Jerry has many Fabry disease symptoms and in 2020 received a heart transplant to keep him having birthdays long into the future.
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Articles by Jerry Walter
My inspiration for writing about Fabry disease pain this month came from the graphic representation of pain shown below.
This week, I turned 69 years old. As a man with classic Fabry disease, I consider this achievement both…
This month, my niece Katrina posted a happy birthday message on Facebook to her daughter, Isabella, my grandniece who turned…
Two upcoming gatherings are reminders about the importance — and availability — of Fabry disease information for those like…
I’ve been receiving biweekly infusions of enzyme replacement therapy for Fabry disease for over 20 years, and I…
One evening in mid-2008, my wife, Angela, and I were watching television at home and saw an advertisement about…
Fabry disease (FD) is a genetic condition caused by variants in the GLA gene. This gene instructs the…
When I think of awareness, I think of familiarity with Fabry disease. To me, spreading awareness means providing information and…
While Fabry disease can involve life-threatening issues such as kidney failure, heart failure, and stroke, other manifestations can also…