Fabry Awareness Month, which is marked every April to draw attention to Fabry disease, is shining a light on…
Articles by Mary Chapman
For this year’s Fabry Awareness Month — observed every April to bring attention to Fabry disease — the spotlight is…
A clinical study in the U.K. is recruiting adults with Fabry disease (FD) to determine whether implantable loop recorders…
The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person…
The Fabry International Network (FIN) is calling for global submissions for its annual FIN Award, which recognizes the…
An eight-week, online mindfulness series for people with Fabry disease — aimed at relieving pain, reducing stress, and…
To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes…
Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual…
Activities ranging from sharing educational posters to “breaking a sweat” are underway to mark Fabry Disease Awareness Month, set…
Fabry disease is a progressive, rare, genetic disorder that can lead to a number of health issues that affect…