Living with a chronic disorder such as Fabry disease can lead to anxiety, stress, and feelings of isolation. Recreational…
Articles by Mary Chapman
People with Fabry disease frequently experience sleep problems. Because a good night’s sleep is essential to physical and mental health, as…
To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients…
While not a classic symptom of Fabry disease, chronic fatigue is common among patients. But there are steps…
A photo of a bespectacled young boy, his red baseball cap slightly askew as he enjoys time outside, will be…
Chiesi Global Rare Diseases has launched a campaign called “Rethink Fabry” that seeks to help people with the…
The American Kidney Fund (AKF) has opened a Fabry disease education and awareness campaign that encourages people with …
Having a chronic condition such as Fabry disease can be particularly concerning if you are living alone. However, there are…
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
Research has shown that newborn screening can effectively detect Fabry disease in infants. Still, more efforts are necessary to…